Ally Cadence Trust for Spinal Muscular Atrophy
0800 23 43 762
0333 44 43 762
" Supporting families affected
  by SMA Type 1 "
" Supporting families affected
  by SMA Type 1 "
0800 23 43 762
0333 44 43 762
0800 23 43 762
0333 44 43 762
" Supporting families affected by SMA Type 1 "


ACT for SMA Butterfly Logo
Below are a collection of poems that have been submitted to us by parents that found them to be of some comfort. If you would like to submit a poem please use the form on our contact page.

~~ A Father's Grief ~~

It must be very difficult 
To be a man in grief, 
Since "men don't cry" 
and "men are strong" 
No tears can bring relief.

It must be very difficult 
To stand up to the test, 
And field the calls and visitors 
So she can get some rest.

They always ask if she's all right 
And what she's going through. 
But seldom take his hand and ask, 
"My friend, but how are you?"

He hears her crying in the night
And thinks his heart will break. 
He dries her tears and comforts her, 
But "stays strong" for her sake.

It must be very difficult 
To start each day anew. 
And try to be so very brave- 
He lost his baby too.

~~ What Makes A Mother ~~
I thought of you and closed my eyes
And prayed to God today.
I asked what makes a Mother
And I know I heard him say.
A Mother has a baby
This we know is true.
But God, can you be a Mother
When your baby's not with you?
Yes, you can He replied
With confidence in His voice
I give many women babies
When they leave is not their choice.
Some I send for a lifetime
And others for a day.
And some I send to filll the womb
But there's no need to stay.
I just don't understand this, God
I want my baby here
He took a breath and cleared His throat
And then I saw a tear.
I wish I could show you
What your child is doing today.
If you could see your child smile
With other children and say
"We go to earth and learn our lessons
Of love and life and fear.
My Mommy loved me oh so much
I got to come straight here.
I feel so lucky to have a Mom
Who had so much love for me
I learned my lesson very quickly
My Mommy set me free.
I miss my Mommy oh so much
But I visit her each day.
When she goes to sleep
On her pillow is where I lay.
I stroke her hair and kiss her cheek
And whisper in her ear
"Mommy don't be sad today
I'm your baby and I'm here."
So you see my dear sweet one
Your children are OK
Your babies are here in My home
And this is where they'll stay.
They'll wait for you with me
Until your lesson is through
And on the day that you come home
They'll be at the gates for you.
So now you see what makes a Mother
It's the feeling in your heart.
It's the love you had so much of
Right from the very start!

(Author, Jennifer Wasik)

~~ This Invisible Cord ~~

We are connected, My child and I,
by an invisible cord, not seen by the eye.
It's not like the cord that connects
us 'til birth 
This cord can't be seen by any on Earth.
This cord does its work right from the start.
It binds us together, attatched to my heart.
I know that it's there, though no one can see,
The invisible cord from my child to me.
The strength of this cord is hard to describe.
It can't be destroyed, it can't be denied.
It's stronger than any cord man could create,
It withstands the test, can hold any weight. 
And though you are gone,
Though you are not here with me,
The cord is still there, but no one can see. 
It pulls at my heart, I am bruised...I am sore,
But this cord is my lifeline, as never before.
I am thankful that God connects us this way,
A mother and child--Death can't take it away!

(Author unknown)

~~ Little Snowdrop ~~
The world may never notice 
If a Snowdrop doesn't bloom,
Or even pause to wonder 
If the petals fall too soon. 
But every life that ever forms, 
Or ever comes to be, 
Touches the world in some small way 
For all eternity. 
The little one we long for 
Was swiftly here and gone. 
But the love that was then planted
Is a light that still shines on. 
And though our arms are empty,
Our hearts know what to do. 
Every beating of our hearts 
Says that we love you.

(Author unknown)

~~ Tiny Angels ~~
Tiny Angels rest your wings
sit with me for awhile.
How I long to hold your hand,
And see your tender smile.
Tiny Angel, look at me,
I want this image clear...
That I will forget your precious face
Is my biggest fear.
Tiny Angel can you tell me,
Why you have gone away?
You weren't here for very long...
Why is it, you couldn't stay?
Tiny Angel shook his head,"
These things I do not know...
But I do know that you love me,
And that I love you so.

(Author unknown)

~~ I’m going to tell you something ~~
I’m going to tell you something,
I hope you'll never have to know.
Ill tell you how a heart can break
and tears can constant flow.
I lost my baby girl you see
an angel in my eyes
The lord reached right down, took her hand
and led her to the skies.
Please don’t ever tell me,
that time will heal my pain
because not even time,
will bring her back again.
Please do not forget my child,
she was a person too,
forever she will live,
inside of me and you.
Just tell me that’s she’s happy,
in that land way up above,
she’s snuggled in an angels wings
wrapped in mummy & daddy’s love. 

(Author unknown)

~~ I Did Not Die ~~ 
Do not stand at my grave and weep;
I am not there. I do not sleep. 
I am a thousand winds that blow. 
I am the diamond glints on snow. 
I am the sunlight on ripened grain. 
I am the gentle autumn's rain, 
When you awaken in the morning's hush, 
I am the swift uplifting rush
Of quiet birds in circled flight. 
I am the soft stars that shine at night. 
Do not stand at my grave and cry; 
I am not there. I did not die.

(Author unknown)

~~ When God saw you getting tired ~~ 
When God saw you getting tired,
and a cure was not to be.
He put his arms around you,
and whispered come to me.

He didn't like what you went through,
and he gave you rest.
His garden must be beautiful,
he only takes the best.

And when we saw you sleeping,
so peaceful and free from pain.
We wouldn't wish you back,
to suffer that again.

Today we say goodbye,
and as you take your final rest.
That garden must be beautiful,
because you are one of the best.

(Author unknown)
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