Ally Cadence Trust for Spinal Muscular Atrophy
0800 23 43 762
0333 44 43 762
" Supporting families affected
  by SMA Type 1 "
" Supporting families affected
  by SMA Type 1 "
0800 23 43 762
0333 44 43 762
0800 23 43 762
0333 44 43 762
" Supporting families affected by SMA Type 1 "
 

Ally Cadence Humphries

ÄCT for SMA Butterfly Logo
ÄCT for SMA Butterfly Logo
9th September 2008 - 18th March 2009






Ally Cadence Humphries was born at 12.36pm on Tuesday 9th September 2008. Ally seemed a very healthy baby until she had problems with her breathing at 9 weeks old. After being rushed into hospital Ally ended up being transferred to another where she spent some time in Intensive Care, with suspected Brochilitis. 

After this first visit Ally never seemed to recover 100%. Many trips were made backwards and forwards to the doctors, and everytime her parents were told not to worry and were prescribed antibiotics to treat her never ending infections.
 
At 5 months old Ally was rushed in to hospital with breathing problems and ended up in Intensive Care and on life support. After 3 days Ally came off the ventilator by herself and was, once again, diagnosed as having Bronchilitis. It was during this visit that people started taking notice of Ally's lack of head control and general movement.
 
An appointment was made with a Neurologist who arranged many blood tests as well scans on her Brain and Spine. Ally's blood tests were done on the Monday and she returned to Leicester for her scan on Thursday 5th March.
  
On Friday 6th March the blood results returned and Ally's parents received the devastating news that she had Spinal Muscular Atrophy Type 1, and estimated life span was just 12 months. Ally's parents took her home and cared for her 24/7 with the help of nursing staff visiting regularly. Ally's Christening was planned for 18th March, her parents 9th Wedding Anniversary and the same day her brothers and sister had been christened. This was meant to be Ally's special day.

On the evening of 17th March Ally stopped breathing at home, she was rushed into Lincoln and her parents were told she had just hours to live. Ally was christened just before midnight and against all odds fought on into the next day. All her family came to say their goodbyes, and she passed from this World at 8.37pm, on what was to be her special day, and only 12 days after being diagnosed.
 
Ally was always full of big smiles and she fought right to the very end. She would be so proud today to have a part in helping others. To read Ally's story in full please visit her Tribute Site at www.allycadence.co.uk