We were recently approached by a lady named Magdalena who is raising funds for Hanna Laczkowska, a little girl with SMA Type 1.
Hanna is currently being treated with Spinraza, which slows down SMA, however, there is a gene therapy available in the USA which can stop the disease. Although this has been approved for use in Europe it comes at an astronomical cost of $2.1 million. Hannah needs this treatment before she turns 2 years old, and the sooner the better!
Although this may seem an impossible amount to raise it is doable with the love and support of others. There is no amount too much for the life of a child.
A JustGiving page has been created via the Ally Cadence Trust so that funds can be kept in one place. This money is to be held in a “restricted fund” meaning it can only go direct to Hanna and her family. This will be paid directly to the hospital that provides her treatment and all Gift Aid contributions will be split 50/50 between Hanna and ACT.
If you would like to donate via Hanna’s page please visit https://www.justgiving.com/fundraising/hannalaczkowskasma