Spinal Muscular Atrophy (SMA) Type 4

SMA Type 4, also known as Adult Onset Spinal Muscular Atrophy is not life threatening. Typically symptoms begin after the age of 35 and can have a very slow progression with muscle weakness getting worse over time.

The effects of Adult Onset SMA depends on the muscles affected. The muscles used for respiratory functions and swallowing are very rarely affected. In most cases weakness only shows on one side at onset, but may progress over time to both sides of the body. There is often no pain but tired aching muscles, along with the feeling of heaviness, numbness, tingling and cramp are possible. Fatigue is very common.

As with the other types of SMA physiotherapy and regular exercise are very important to maintain mobility, and there are some neuromuscular centres across the UK that have specially trained physiotherapists and occupational therapists