How the Ally Cadence Trust can help

The aim of the Ally Cadence Trust is to provide both emotional and financial support to families living with Spinal Muscular Atrophy (SMA) and to donate money into research for a cure.

We can be contacted at any time of day on our freephone number. If you are worried your child has SMA, you have questions regarding SMA or you just need support/someone to talk to please phone us. We can also put you in touch with your local support family. Please see our Contact Us page for details.

We know how important it is to provide a quick response upon diagnosis, and we will happily provide support to anywhere within the United Kingdom, including home visits, as soon as you are ready. We stock various items of equipment that we can loan out to families upon diagnosis. These items include:

• Pulse Oxymeters (SATS Monitors)
• Apnea Monitors
• Wedges
• Car Seats
• Prams/Pushchairs
• Sensory Toys
• Video Cameras/Digital Cameras

Although we cannot guarantee an item of equipment will be immediately available we will do our best to provide the item as soon as we possible can.

Memorial items

For families that have sadly lost a child to SMA an application can be made to the Ally Cadence Trust for help with memorial items, such as memory boxes. We have an in-house Web Designer who can also provide families with a Memorial Website, where people can leave tributes and messages.